XLH Australia Incorporated

Patient support group

By - neford123

XLH Awareness Day–23 June 2021

XLH Awareness Day was 23 June 2021. This year, we were fortunate enough to be able to host a morning tea with the Parliamentary Friends of Medicines in Canberra. Dr Tony Lafferty and Dr Peter Simm provided an overview of the clinical diagnosis of XLH and the burden of the disease. In addition, our President, Sandy, shared her story while