XLH Australia Incorporated

Patient support group

By - neford123

2022 International XLH Awareness Day

The 2022 International XLH Awareness Campaign is Access Your Best Care.  This follows the development of the Clinical practice recommendations for the diagnosis and management of X-linked hypophosphataemia guidance in 2019. This guidance is critical in the care and management of those with XLH. This inspired us to extrapolate 12 key recommendations from the guidance in an effort to make them

By - neford123

New XLH treatment available from November 2022

A new XLH treatment will soon be available for Australian children and adults. On the eve of International XLH Awareness Day (23 October),  this is the news Australia’s XLH community has been waiting for. From 1 November, CRYSVITA® (burosumab) will be subsidised through the Pharmaceutical Benefits Scheme (PBS)3 for Australian children and adults living with a disease, known as X-linked