XLH Australia Incorporated was established in 2018 as a patient support and advocacy group for people living with X-Linked Hypophosphatemia (XLH). XLH Australia’s mission is to promote XLH awareness and education for affected families, carers, medical professionals, and wider Australian community.
The support group is coordinated by volunteers. We are proud members of the International XLH Alliance and a valued partner of Rare Voices Australia.
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XLH Australia acknowledges the Traditional Custodians of Country throughout Australia and their continuing connection to land, waters, skies, and communities. We pay our respects to Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples, including those living with rare diseases.
We honour the strength, knowledge, and resilience of First Nations peoples and commit to walking together in the spirit of equity, inclusion, and shared healing.
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