XLH Australia Incorporated

Patient support group

Resources and links

Being diagnosed with XLH can be difficult and sometimes, there’s not a lot of information about. Below is a list of useful links to patient resources:

Links to rare disease support networks

The following useful links provide additional information and support:

Research links

There is no cure for XLH, but there are treatments. Below is a selection of research articles conducted by medical practitioners across the globe.


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