XLH Australia Incorporated

Patient support group

Rare disease day logo28 February 2021–Rare Disease Day

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness in the general public and decision-makers about rare diseases and their impact on patients’ lives.

Visit www.rarediseaseday.org for more information.

 

23 June 2021–XLH Awareness Day

This year, XLH Australia presented to the Parliamentary Friends of Medicines at Parliament House, Canberra. This provided a wonderful opportunity to raise awareness of XLH.

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