XLH Australia Incorporated

Patient support group

XLH Australia Incorporated (Inc) is a patient support and advocacy group. It was founded in 2018.

The advocacy and support group is operated by a dedicated Australian group of volunteers who are affected by, or interested in, XLH (X-Linked Hypophosphatemia).  It is the first organisation of its kind in Australia which is specifically dedicated to XLH.

XLH Australia; support; advocacy
XLH patients share their journey

Our role is to support and advocate for patients living with this rare condition. To achieve this, XLH Australia Inc works closely with Rare Voices Australia and the International XLH Alliance

We are actively liaising with government departments to advocate for new and improved treatments on behalf of our XLH community.