XLH Australia Incorporated (Inc) is a patient support and advocacy group. It was founded in 2018.
The advocacy and support group is operated by a dedicated Australian group of volunteers who are affected by, or interested in, XLH (X-Linked Hypophosphatemia). It is the first organisation of its kind in Australia which is specifically dedicated to XLH.
We are actively liaising with government departments to advocate for new and improved treatments on behalf of our XLH community.