2023 World Rare Disease Day
The 2023 World Rare Disease Day is on 28 February. The event is a globally-coordinated movement on rare diseases, working toward equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
At XLH Australia, we’re advocating for the best care standards for everyone the XLH community. This means a care team that works together collaboratively and communicates effectively to provide the best health outcome possible. While traditionally perceived as a childhood disease, XLH is a life-long condition that impacts multiple systems in the body and, without the right treatment, worsens over time.
For more information and to download some 2023 World Rare Disease Day sharables to show your support on your social media channels, you can visit the World Rare Disease Day website.