Episode 2 of our Podcast series, Living with XLH: Parenting a child with a rare disease, is out now!
This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.
Topics discussed:
- the journey to diagnosis
- parenting a child with a rare disease
- navigating healthcare and advocacy.
You can listen on Spotify, Apple Podcasts, Pocket Casts or Amazon.
Stay tuned for Episode 3!