XLH Australia Incorporated

Patient support group

By - neford123

XLH Awareness Day–23 June 2021

XLH Awareness Day was 23 June 2021. This year, we were fortunate enough to be able to host a morning tea with the Parliamentary Friends of Medicines in Canberra. Dr Tony Lafferty and Dr Peter Simm provided an overview of the clinical diagnosis of XLH and the burden of the disease. In addition, our President, Sandy, shared her story while

By - neford123

Inquiry into approval processes for new drugs and novel medical technologies in Australia

On 13 August 2020 the Australian Minister for Health, The Hon Greg Hunt MP, the Committee called for an inquiry into, and report on, approval processes for new drugs and novel medical technologies in Australia. XLH Australia was proud to make a submission to this inquiry. Submissions have now closed, to view the submissions on the website. Due to Covid19