Accessing your best care
Accessing your best care: To celebrate International XLH Day on 23 October 2021, the International XLH Alliance delivered a campaign focusing on what it means to access your best care. The campaign shared patience stories from across the world and shared some tips for members of the XLH community to ensure they are receiving the best care possible for them and their condition. The campaign also highlighted 12 key recommendations that patients can use to advocate for better care.
You can read more about it and download materials here.