The Standing Committee on Health, Aged Care and Sport has recently tabled its report in the Australian Parliament – The New Frontier: Delivering better health to all Australians.
XLH Australia is a strong advocate for the patient voice and we are working toward better access to new medications for all Australians. We were delighted to provide a witness statement as part of the development of this report.
There are some good recommendations which would benefit patients greatly including integrating the patient voice and establishing a Centre for Precision Medicine and Rare Diseases.
For more information, click this link to read the full report (The New Frontier: Delivering better health to all Australians) and its recommendations. You can also view the statement in Parliament by Trent Zimmerman MP (Member for North Sydney and Chair of the House of Representatives Standing Committee on Health, Aged Care and Sport) here.