XLH community has fingers crossed this rare disease day
In the lead up to Rare Disease Day (28 Feb), XLH Australia conducted a patient/carer survey about living with XLH. This is the first Australian XLH patient/care survey, and the results are now in. There are some fascinating insights. Click on the below to view a snapshot of these results.
You can see the full survey results here.
We also asked our community what were their hopes for the future. Below is what they said: