XLH Australia Incorporated

Patient support group

By - neford123

XLH community has fingers crossed this rare disease day

In the lead up to Rare Disease Day (28 Feb), XLH Australia conducted a patient/carer survey about living with XLH. This is the first Australian XLH patient/care survey, and the results are now in. There are some fascinating insights. Click on the below to view a snapshot of these results.

XLH rare disease day
Results of survey of XLH community.

You can see the full survey results here.

We also asked our community what were their hopes for the future. Below is what they said:

XLH rare disease day XLH rare disease day

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