By - neford123
2nd Asia Pacific XLH Patient Meeting
On 17 September 2022, we attended the 2nd Asia Pacific XLH Patient Meeting.
The virtual meeting included members of rare disease organisations such as XLH Australia, Rare Disorders Society Singapore, Malaysian Rare Disorders Society, Thai Rare Disease Foundation, XLH India, Illness Challenge Foundation China, Rare Disease Hong Kong Limited, Taiwan Foundation for Rare Disorders and the International XLH Alliance, as well as XLH patients and doctors.
The focus of the meeting was to develop a united voice for the XLH community in the Asia Pacific region and across the globe.
As co-host of the event, we shared an overview of the establishment of XLH Australia and participated in the panel discussion.
#xlhstrong #wearerare #xlhaustralia #internationalxlhalliance #xlhdenmark #thepatientvoice #unitedpatientvoice