Tag: rare disease

XLH Australia: Celebrating the Real Heroes of National Carers Week

by neford123

National Carers Week is here—and at XLH Australia, we’re rolling out the blue carpet for the unsung heroes who make our community strong: the carers. Why XLH Carers Deserve the Spotlight Imagine juggling medical appointments, advocating for rare disease awareness, and being the emotional anchor for someone living with XLH—all while managing your own life. … Continue reading XLH Australia: Celebrating the Real Heroes of National Carers Week

Podcast launched for XLH Awareness Day

by neford123

To celebrate International XLH Awareness Day 2024 on 23 October, XLH Australia (https://xlhaustralia.com) is releasing the first of a six-episode podcast series, “Living with XLH”. In our first episode, XLH Australia President Sandy Bevc and Vice President Naomi Ford are joined by a Special Guest, Prakalp Sudhakar, an XLH patient and the founder/chair of XLH … Continue reading Podcast launched for XLH Awareness Day